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HELP: What do I do now, ... I'm desperate, ....

 
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misserable cali dude



Joined: 03 Oct 2009
Posts: 6
Location: San Jose, ca

PostPosted: Sat Oct 03, 2009 7:24 pm    Post subject: HELP: What do I do now, ... I'm desperate, .... Reply with quote

I had a mesh and plug repair in the beggining of June, and am still experiencing pain that is severe enough that I am unable to stand or sit without causing an emergent pressure that progresses to the point of my losing consciousnesses. In fact before I caused the injury in April I was walking at least 3 hours a day doing volunteer work for a non-proffit: I am now not even able to make it to the local store (a mere five blocks) without feeling like something inside me is stretching like a rubber band about to break.

None of the diagnostic exams I've undergone show anything that is mechanically wrong: Surgeons and MDs are telling me my problem is purely psychosymatic: A tough pill to swallow considering this just a another way of saying i am psychotic. On the other hand My Psychiatrist is insistant that, while I am clearly experiencing a major depressive state as a result of the procedure, the pain I am in is obviously muscular skeletal in nature. While these two "care givers" are figuring out resposibility for me, neither have started me on an appopriate course of treatment. And even hough neither disputes that I am disabled,neither is willimg sign off on an existing CASDI claim stating that the other physician has primary responsibility. I am now totally broke and facing an eviction because I have only received claim payment through 8/14. Not to mention their reluctance to continue providing ANY pain mediction, my inabiity to purchas food or beverages, and the managing HMOs refusal to intervene on my behalf.

Since this procedure I have had about 40 seperate primary care follow up, post~op surgical, and ER visits (rhat does not include psychiatric appts, group sessions and advice nurse calls) I've lost a significant amount of weight (apprx 50lbs), my appetite is virtually non existant, I'm having issues with urination (starting and maintaining flow), erection wnd orgasm is now nightmarish, and l am totally fatigued all the time because I am in pain all the time. In fact I think this experience has altered my personality so much, that im likely incapable of being an active, healthy, positive, and productive citizen again. I've sought treatment for this problem so many times, that my very credibility is in question. Also my COBRA benefits expired 10/1, so I am now stuck in a bad spot. I tried to engage an attorney to help compell my physicians to help me ..... but the message i keep hearing is unless someone loses a limb or dies they won't even listen.

I can't live like this for another 3 years let alone six months....... this procedure has caused innumerable issues, ... physiologically, mentally, and Psychosocially. I trully wish I found the Hernia Bible before my procedure. If I had known all he info I know now, I would not have had the produre!!!

Anything you beterans can suggest would be of unimmaginable help to me~ whether its legal, medical, homeopathic etc.....
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Joined: 04 Jan 2006
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PostPosted: Mon Oct 05, 2009 10:20 am    Post subject: Reply with quote

Stories like this are all too frequent. The doctors know what the statistics are for this kind of op, and in your case may just be trying to protect themselves from legal action by calling your problem psychosomatic. The more of a psychiatric case they can build up against you, the more they can discredit your testimony if you end up in court.

This sounds like the kind of case where you need a very skilled specialist surgeon, e.g.
http://www.noinsurancesurgery.com/Hernia/Mesh.htm
to go back in there and try to solve the nerve problem, even if it means cutting the nerve and numbing the area. Without money of course this is a big problem. But certainly you should talk to some people other than your normal medical team. You need to undo the damage to your confidence that's been caused by branding you as a loony. So try asking a few lawyers if you have a case. If not medical negligence, then perhaps failure to warn you of the unusually high rate of chronic pain after this op. All the major research studies can be found on our page at
http://www.herniabible.com/articles.html
Any compensation that you might be able to get could be used to pay for corrective surgery.

If you can, also try to see Dr Petersen (his link is above) to get any advice he is prepared to give you.

Regarding pain relief, applying warmth to the area helps to relax any muscles which have gone into spasm due to the pain. Muscular spasm invariably makes pain worse. Homeopathic arnica and aconite (potency of 30) taken three times a day for a week are often helpful in a subtle way. Bach flower remedies for confidence and depression (read the descriptions to see which ones you identify with) can help you gain more mental strength to deal with this.

Our thoughts are with you.
Herniabible Staff
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misserable cali dude



Joined: 03 Oct 2009
Posts: 6
Location: San Jose, ca

PostPosted: Mon Oct 05, 2009 2:55 pm    Post subject: update Reply with quote

Thanks for the information. Im going to see about finding options, and hit the phone to get an attorney to listen to me. All i realy want is to get treatment to fix the issue so I can get back to being just a regular guy, who has aregular job, with a regular paycheck, an a hot wife/girlfriend that is pleased emotionally AND physically.

The reality for me is actually much worse in a legal case than ive disclosed thus far. 2 years ago my substance abuse issue was at an apex, and i attempted to harm myself permanently. I was detained involuntarily for a short spell then entered my HMO's Chemical Dependancy Recovery Program. Interestingly, ever since i entered that program the quality of my medical care has taken a steep nosedive (not to mention that the few remaining members of my tight nit family i was once a part of, have totally and completely abandoned me ~ not surpring i have not become a cheerleader for the word co~dependancy and/12 step programs). Everytime I've seen a doctor at that HMO (notice how I am not saying the actual name of this HealthCare comany that wants you THRIVE by LIVE 'ing in a manner promoting WELLness) I am put on trial and made to feel guilty by the md's assumptions ofbyour being a liar and a theif and must be manipulating them into providing narcotics. Well in this instance, for this health problem..... I'm just straight up demanding them, ..... and not the Vicodin either, that works as well for this pain as an asprin would for a gunshot wound.

But, I diggress......
you were saying in your reply that my physicians, and HMO organization may have Been making efforts to discredit my testimony should this go to trial if in fact there is even a case?..... it appears that I have unintentionally been expertly diecrediting myself already, .... being homeless, living and working in a homeless self help work program for 10 months, being involuntarily detained by psychiatric emergencies 5 times (3 directly related to this issue), and having my family completely turn away from me would not have a good character building effect for me. Its really a shame too ~ my older sister is an outstanding well known well connected Stanford educated tax attorney with a Malpractice and PI specialist in her practice. Oh well, ill update more later if that's ok? Maybe someone in a similar circumstance to my own can avoid the craters I keep falling into!

~PS~
Gosh, the idea of another surgery is such a pleasant thought. The first one was such a positive experience, ... what, with recovery completely solo, and the only visitors being former 12 steppers swipping my percocett and acquaintances from my days as a homeless person hlping themselves to my food and money .....the actual idea of a second one makes me. .... well, makes me downright randy!!![/u]
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misserable cali dude



Joined: 03 Oct 2009
Posts: 6
Location: San Jose, ca

PostPosted: Tue Oct 06, 2009 6:44 pm    Post subject: follow up with medical care dramma..... Reply with quote

My health benefits premium which was being paid by mother, stopped without notice effective as of 6/30. I guess informing me about this was some type of 12 step lesson. Unfortunately, the HMO that I've been a member for 35 years had me listed as an active member up until the beggining of this month. Effectively causing me to accumulate a pile of more debt: I will be charged the full non~member cost for those ER and office visits made between 7/1 and 9/30. Tho accumulated unintentionally, I am still resposible. Thanks for your wonderfull support one more time. Words can not describe the intensity and quality of love in my heart for family. In any case my pursuit for pain resolution must now and is currently continuing through the county healtcare system.

Unfortunately for me I had made a very large error at the county hospital: I not only passed out in their hospital ER waiting room (after 10 hours and repeated warnings of expontially increasing pressure pain from.sitting) but I made an assumption: Making a complaint as a concerned patient, at the ER staff lack of action by coming to my aid, even after falling in a puddle of my own sputum. I made the complaint imternally, not wanting anyone to be troubled, but more as a.way.for me to understand. Believe when I say the remaining 15 hours of my stay was full of intense pain, frustration at being ignored, and confussion at the staff calling me a "Dramma Queen" (to be fair, this was otherworldly to me, like I was participating in an episode of the TwighLight Zone.) If I heard this story from anyone I would just flat out not believe it, ..... yet that is what happened. At the end of my formalizing my concern with the consumer relations department, I was promissed a follow up call from the ER dept chair, as well as from the ER Nursing manager, and a letter that would address my concerns. To date I've only received a 7 sentance letter acknowledging my concern.... and only after having to call a second time two and ? weeks latter with the exact same concerns coupled with even more abhorrent treatment. On a subsequent visit, that I had no choice to make, I passed out again after repeated pleas to lay down. Hoecer, this time I.was denied my request to see a physician or a nurse, given a large dose of oxymorpheine (dillauded: despite my pointedly refusing) then officially held on a 5150. My remining hours on the county hospital I was subjected to situations that were in my opinion designed to discredit and enrage me. I lost my temper and was physically removed from the hospital. This, only because I reasonably expected impartial.quality care~and when I didn't receive it, I refused to leave and made requests for my patient rights. Eventually, I vwme to realize that the transpired events obligated me to make formal complaints with the state and federal regulatory agencies. Hence not only meaking it nearly impossible to receive adequate care at the county system, but essentially torpeedoing any chance at continuing my chosen allied healthcare carreer.

Has anyone else felt, or actually seen or been experiencing/exprienced anythingbsimilar?
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misserable cali dude



Joined: 03 Oct 2009
Posts: 6
Location: San Jose, ca

PostPosted: Thu Oct 08, 2009 4:31 pm    Post subject: CAT Scan With Contrast and UltraSound Reply with quote

I've come to the conclusion that either my physicians, surgeon, psychiatrist, and/or HMO administrative staff believe that my reports of constant moderate to severe pain, urination problems, substantial unintentional short term weight loss, erectile and sexual abnormalities, and tales of loosing consciousness in hospital ER waiting rooms, is an elaborate 6 month or more hoax that I've deviously designed, in order that I might rake in all the riches and attract all the young and hot women, gotton by laying on an old futon, in a sparcely furnished 12x12 room, with no tv or reading glasses, all day, pretending to be miserable, an avoiding the unbelievably negative social and psychological effects of persuing and working in a professional setting, while figjting with an inconscienable unquestionably biased local and regional medical review board, that feels they have a right in deciding whether or not I should collect the many riches provided by the California State Disability Isurance program, and retain shelter during the coldest months of the year ~

OR

That since I've a history of clinical depression, sunstance abuse, debt, and lack meaningfull and measurable support from family, friends, and financial means, that I will give up my efforts to find a solution for my heath issues, in place of all the warm fuzzy comforts offered those that choose to sleep in merchant doorways, feeling hopeless, unloved and trampled over, with all the exciting positive psychological benefits living with a condition that causes chronic unyeilding pain, and limited mobility can provide.

Well, I'm seemingly out of options, ..... I've been grabbing at straws, but every remedy ends with another insurmountable roadblock. My immagination has now taken over and there is realy only one logical reason, except for all the commite members being of pure malevolent evil. he following are reasons forbthis conclusion:
1. No MD since April has any incling or outward sign sign that they wish to develop a long term realatioship or gaol oriented long term health incrasing plan with me..... this is a reaction despite my questions and overt hints at being mtivated to so.

2. After meeting with an MD, they are quick to suggest someone else to see, seemingly to rid themselves of me.

3. I am due for some routine and not so routine tests that I've not had in years (ie general physical exam, cholesteral screeing, bllod/sugar tests, colonoscopy etc

3. after surgery, the doctor came through to summarize the procedure. He told thar he found a fair ammount of destroyed tissue, but in subsequent visits when asked, he said i would have to talk to my primary physician because he'd no idea what it s case was. Too date I've not heard or or seen ay pathology report or explanation.

4. None of any of the diagnostic imaging scans have ever been shown to me

5. I am currently exhibiting every symptom of a largely fatal disease in which I am in the right age group for the vast majority of those who get it.

My conclusion: I have Hodgkins~Lymphoma and it was glaingly evident to any physician who examined me, or made more than a passing glance at my charts and/or diagnostic exams but now it is too far progressed to be of any therepuetic value. I am, in all likelyhood cosidered by a kaiser administrator, a walking dead person who would be wasting valuable time, resources, and money trying to save.
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misserable cali dude



Joined: 03 Oct 2009
Posts: 6
Location: San Jose, ca

PostPosted: Wed Oct 14, 2009 9:22 am    Post subject: found a primary care physician to see me..... Reply with quote

Finaly I.was able to het myself in to be seen by a primary care physician today. The clinic is actually nearby, and is very conveinient. Unfortunately the visit again resulted in being a waste of time, as all of my requests were flatly refused by the prospective Internest. Im sure this doctor is very capable, but what I'm not sure is if she understood anything I tried to explain to her. When she finally entered the exam romm at about 11:00, 2 hours later than my 9am apt time, I could instantly tell by her body language that she was annoyed before even meeting me. She started with the question, "what is it you exspect from your coming here today" I began my answer by saying I would need to go the major events of the last six months chronologically. She interrupted lmost immediately, with the same question, so I answered. My three goals:
1 obtain a diagnosis a begin a course of treatment to get back my life, and begin.work bas soon as possible....
2 pain controll medication. Bcause, as I knew I would run out. Now as ibwarned, since being on opiate meds since April (Percocet 5/325 and Vicodin 5/500) I wished to avoid withdrawals, moreover as the medical field is reducing this medication, my pain levels are increasing. *infuriating*
3 obtain a signature for continued CASDI claim.

She flately refused all requests and was about to move along to her next patient when I, in frustration remarked about not receiving any type of physical exam. She went and got a nurse, proceeded with a very quick exam, and then they both left the exam room for a good 10-15 minutes.

Too make a long story short, she still refused. When asking for a diagnosis she said nothing when asked for a written summary of the visit she refused when asked for a written dternination.on my ability to work based on the physical exam of my CLEARLY visable swollen groin she refused. What can I do please, ..... my god please someone help me.

I've comoleted the online form for the no~insurance surgery center butt no one has contacted me. All I want quite seriously is to get this fixed in a way that the discomfort is tollerable so I can work and be regular.the way it stands now, I'm going to be on the gosh darn streets..... no exaduration: And all because I was misled into believing this procedure would reduce my pain!!!!!!
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misserable cali dude



Joined: 03 Oct 2009
Posts: 6
Location: San Jose, ca

PostPosted: Wed Oct 14, 2009 8:48 pm    Post subject: out of options Reply with quote

I've spent most of the day so far trying to.get an attorney to help with the mess I'm in. Thar hernia surgery, the one I was told would be outpatient, with a quick 2week recovery period, and little to chance of complications, has effectvely, killed mem. I still have the original pain, but now I have to force myself to eat, I get diaphoretic, when sitting, standing, or walking to far, I've got erectile issues (a very pleasant ego boosting experience, I must say), and problems with urination. And yes, I've a history with clinical depression and substance abuse. As far as the depression and anxiety is concerned, why is this even being brought to bear as a primary concern surrounding symptoms that areexpressed by thousands undergoing this method of hernia repair. Add in the factors including inability to earn income~but care providers refusal to extend CASDI, threat of eviction from residence, undiagnosed severe disabling pain~but physicn refusal to prescribe meds any further, taking opiate medicarion since April but neing suddenly cut off~despite increasing pain and complicatioms, and being very proactiveand expressive about those issues.

Yea, you are rightmedical community I am eagerly continuing this "ruse" to get a prescription med hi, .... its worth putting my personal safety, living situation, and further ability to work at risk. I mean look at my history, I have a long record of abusive behavior, theivery and general mayhem to obtain substances in hospitals.
KAISER MEDICAL SERVICES, AND THEIR STAFF DESTROYED EVERY ASPECT OF MY LIFE.*

* and you aren't allowed to bring them to civil court because all members whether you know it or not, agreed to binding arbitration when you signed up.

And statistically, binding arbitration cases are almost with out question won by the corp being sued!
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