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Terrible side effects after hernia op 10 weeks ago
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admin
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Joined: 04 Jan 2006
Posts: 381

PostPosted: Sat Apr 20, 2013 12:33 pm    Post subject: Reply with quote

So sorry to read another of these stories. It's good that you've been experiencing some improvement, albeit slow. Hopefully this will continue.

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hillbilly5



Joined: 23 Jan 2012
Posts: 11
Location: East Anglia

PostPosted: Sun Sep 22, 2013 9:05 am    Post subject: Update. Reply with quote

So, we are almost 2 years post op.

On the plus side, Hubby is now in a job that he is enjoying and can manage despite the side effects of the medication and the physical problems that he endures on a daily basis.

To try and help with the bladder problems that the surgery left him with, he was offered Tibial Nerve Stimulation which can help to get the nerve that stimulate the bladder to work. He had a course of 6 treatments that eventually improved the bladder function but he was warned that the treatment can wear off and so may need a topup session. Over the past few weeks he has again had the old problems with bladder function recur and so has booked a further course of TNS.

His bowel problems are as bad as they ever have been and will spare you the graphic details of what he has to endure on a daily basis and the embarassment that goes along with it!! But as you can imagine, not nice for a 44 year old!

The sexual function has improved somewhat, although his function has not returned to what it was before the operation.

He still has to take painkillers for the nerve pain which he still suffers and continues to have to increase the dose as needed which then has a knock on effect as the side effects become worse as well.

Legal proceedings are still ongoing. The hospital concerned did write to the solicitor asking if he would be happy with an explanation of what happened and an apology...very sad that we had to wait and threaten legal action before they offered to explain what happened!

As previously stated...anyone thinking of having hernia surgery, be prepared to know exactly what you are letting yourself in for and the complications that can occur. We would never have thought that 2 years down the line we would still be dealing with the after effects of the 'routine' operation we were 'sold' that would have a '2 week recovery' period.
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Europe1



Joined: 04 Sep 2013
Posts: 3

PostPosted: Mon Oct 14, 2013 2:45 pm    Post subject: Reply with quote

Hi Hillbilly.

I read your post with much sympathy and sadness. It makes my surgery complication seem trivial (low hanging testicle). In my case, either the muscle or nerve started healing on week 8 and now after four months it is almost fully recovered (I opted for the Desarda repair, but the aspect of the surgery that caused my symptom is common in all open surgeries). Clearly, in your case the nerve damage is more severe. Nonetheless, it was my understanding that nerves can heal, as mind did, and sometimes it can take up to 2 years.

Have you thought about having the mesh removed in a second operation? Could it be that some compressed nerves will be released? Mind you, I also understand that mesh removal is a tricky and delicate operation that is not without risks. Furthermore, from your description, the affected nerves are different ones not near the site of the operation. Just couldn't help wondering though... maybe it's worth investigating?

Best wishes for your husband's steady recovery.
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hillbilly5



Joined: 23 Jan 2012
Posts: 11
Location: East Anglia

PostPosted: Thu Dec 31, 2015 5:07 pm    Post subject: Reply with quote

So, four years on and I felt it was time for an update.

Hubby still has bladder and bowel issues but over the last 6 weeks has weaned himself ff the gabapentin which he has been on since the hernia op for nerve pain. He is fed up with being dependent on tablets and the inevitable side effects. He still has nerve pain but feels he can manage most days.

He now has another job, which thankfully comes with free BUPA cover which is just as well as he has another hernia. So today for the first time we have the seen the private consultant. On examining hubby he said that his first hernia repair has failed and was shocked at his complications. He has offered to do a keyhole repair on the second hernia and checkout and repair whatever is going on with the first one.

Seems to us that the first repair was never carried out properly first time round. We tried to sue for medical negligence but with Bolams Test and being provided with a medical report by a so-called exert who never met hubby and who clearly never read his medical notes properly it is clear that Drs seem to cover one anothers backs and it is very hard to pursue justice.

In the meantime does anyone have any experience or advice on keyhole repair please????
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lapaz66



Joined: 07 Jan 2012
Posts: 37

PostPosted: Fri Jan 01, 2016 5:15 pm    Post subject: Reply with quote

assuming this second hernia is on the same side, have you considered the option of getting the mesh removed first (difficult but not impossible) and do a non-mesh repair next (for example with desarda procedure) for the new hernia?
Removing the mesh might solve some of the chronic pain problems. Having said that, removing a mesh might risk causing new damage and pain.
Maybe consult a surgeon who does desarda repairs for a second opinion?

Another alternative for keyhole repair might be the socalled TIPP technique. This is open repair, but the cut is made at a different height and the mesh is placed behind the inquinal canal (same location as with keyhole repair), not in front like with ordinary open repair. I would ask your surgeon about this option.
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davids



Joined: 12 Mar 2016
Posts: 1
Location: argentina

PostPosted: Sun Mar 27, 2016 9:35 pm    Post subject: message to hillbilly5 Reply with quote

My name is David (47) I’m from Buenos Aires, Argentina.
First sorry about my English because I don’t speak very well the language.
I was looking for pupil who has the problem I have with an hernioplasty and I found here.
At beginning 2014 I start having little pain in the left groin side, after enter in hospital ward they found a little hernia (14 mm or 0.55inch) with a ecography.
I knew a surgery doctor and ask an appointing with him. He without check me he sent to have another ecography and found the same. So we arrange a date for the surgery. He is very known as esophagi surgeon.
The surgery was made in august 2014 with mesh.
Summary:
Symptoms after the surgery.
1- Very hard pain in the root of the penis left side.
2- A lot of hard punctures in the left leg in the internal and superior part of it, close to the testicles.
3- I felt like a cord that started in the scare and went down surrounding the left testicle and went back to the anus.
4- Then I felt like two cords that started in the perineum area and went to the legs. The much worse was the left.
5- I couldn’t seat and I couldn’t walk correctly.
6- I had terrible and constant urge to urinate.
7- Urine dripping after urination.
8- Something wrong after eyaculation.



Nobody knew what was wrong in the surgery.
The surgeon said he didn’t see anything it was all clean.
Then I went to a neurologists, urologists, etc.
I had an MRI (RMN) and all was ok.
After 3month on October 2014 another surgeon took out the mesh.
I had an improvement but it wasn’t enough.
So the neurologist center made infiltrations on the nervs. (pudendal an others) and a lot of kind of medicines.( pregabalina, morphin derivates, amitriptilina, etc)
Nothing happened.
I was out of my job during 5 month.
After a year this center sent me to see urologist specialized in neurology.
He recommend me to make a tibial neuroestimulation . It needed 24 sesion of 30 minutes of this treatment each week.
And recommended to make an electromyogram.
I made it and found me that some nerves were damage: Pudendal, and the nerves of the groin chanel.
Now I’m in the middle of the treatment, I had around 30% of decrase of the pain.
These are my symptoms now.

1- Pain in the perine area that prevents me to seat during long time like drive a car.
2- Pain in the left leg close to the testicles.
3- Pain in a triangle under the scare towards the testicles.
4- Penis erection every night that make me to wake up and urinate.
5- Permanent discomfort in the urethra.
6- Urine dripping after urination.

I made some consultations to other doctors (neurologist surgeon and groin surgeon specialists)
The neurologist surgeon says that maybe a neuromodulator it is needed. ( this is a device that put in your body and take signals from the perine area and put other signals in the spine. Every 5 years the battery needs to replace)
The groin surgeons says to make a neuroctomy of the groin nerves.
I expect that nothing more I would need.
I would like to have contact with somebody that has some similar symptoms like me, and to know which way I have to choose.
In this site I read somebody that has or had a very similar situation.
Thank you for your help.
David Salama.
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admin
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Joined: 04 Jan 2006
Posts: 381

PostPosted: Tue Mar 29, 2016 9:21 am    Post subject: Reply with quote

Your English is perfect. We are very sorry to hear this story. We are doing our best to warn people that this can happen. It is very unfortunate that doctors do not give their patients the real statistics before they undergo the surgery. We hope that some of the members of this forum will answer you.
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PeeTeeT



Joined: 26 Oct 2017
Posts: 2
Location: why r u lookin at dis?

PostPosted: Thu Oct 26, 2017 12:20 pm    Post subject: Re: Terrible side effects after hernia op 10 weeks ago Reply with quote

[quote="hillbilly5"]My husband had an inguinal hernia repaired 10 weeks ago. This was an open repair with mesh. When he saw doctors before the operation we were 'sold' the procedure as being merely a 'routine' operation with the only side effect being a possible recurrence and this was very unusual, and that after the operation he would only need about 2 weeks off work and apart from not being able to lift heavy weights would be back to normal.

On the day of the surgery, he was admitted to the day case unit and saw the surgeon who said that had he seen my husband in clinic he would have said that the op needed to be done under general anaesthetic. He then said that he had no anaesthetist there who could do a general anaesthetic so he could either go away and be called back within the next 28 days or have a local anaesthetic. Having arranged work so that he could have the next 2 weeks off and having psyched himself up for the op he went ahead with the local anaesthetic. The surgeon at no time explained why he would only have advised a general anaesthetic.

Basically, what should have been a 'routine' op has left him feeling that his life has completely changed. He is only 42 years old and is worried that life will never be the same again. These are the symtoms that he has been experiencing ever since he had the operation:

Urinary symptoms

Unable to stop flow of urine
Unable to increase flow of urine
Sensation of needing to urinate but unable to.
Weak flow of urine.
He feels that he has no muscular control over the urinary process.

Bowel symptoms

Lack of control over bowel movements.
Urgency when feel the need to go.
Loose bowel movements - on one occasion he soiled himself because the stool was so loose and because of urgency/lack of control which was extremely distressing.
Tickling sensation inside back passage approx 1" - initially felt like an annoying tickling hair but has now worsened and feels lilke red, hot poker is inside.
Always in pain - inside and outside anus and gets worse as day goes on.
Sore ridge outside anus which is in constant pain and worsens to intense paid after bowel movement.

Sexual Symptoms

Great difficulty getting aroused and erect
Great difficulty maintaining erection
Once erect (if he achieves it) penis is much less rigid than before operation.
Greatly reduced sensation
Great difficulty reaching orgasm and more often than not can't achieve orgasm
If orgasm is reached, ejaculation is very weak and there is virtually no semen.
Unable to get a spontaneous erection (no longer wakes in the morning or during the night with an erection.

As you can imagine he is so distressed by these problems as they are embarassing and affect how he feels as a man. Before the op we had a very satisfying love life and he is devastated that at such a young age this could be what he has to put up with for the rest of his life. I keep trying to reassure him and am very sensitive to him as I understand how hard this is for him and us.

He has had blood tests which have ruled out any other underlying health issues. Before the operation he had good health with no issues. Our biggest fear is that there has been nerve damage and that he will not recover from any of the above.

We have an appointment to see his GP today and desperately hope that he will be speedily referred to hospital.

Has anyone had similar experience or would take an eduated guess that it sounds like nerve damage?

Since the op we have done alot of research and had we known then what we know now about the possible complications etc he would never have had the op - he said that he could have put up with the minimal discomfort that he experienced with the hernia, but what he is going through now has devastated him.

PLEASE HELP - IF YOU HAVE ANY ADVICE FOR US WE WOULD BE ETERNALLY GRATEFUL.[/quote]

Ok so this is obviously his [Husband and somewhat you] fault. After hernia repair, you are supposed to lie down and keep movement at a minimal. I myself have had an inguinal hernia repair. Some of these symptoms are common after surgery but you should have to deal with them. Also why would you expect to have sex after a surgery? Of course he wouldn't be able to produce semen, because the surgery was on an INGUINAL HERNIA. That's when your intestine goes down into the males privates. He wouldn't be able to ejaculate or produce urine properly for a while. That's somewhat a given. But I just find it funny that you thought he could have sex WHILE STILL ON BEDREST AND RECOVERY!
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moey



Joined: 03 Jan 2017
Posts: 14

PostPosted: Fri Oct 27, 2017 12:31 pm    Post subject: Reply with quote

Not a huge fan of this site. But they botched this guys surgery. Hope they are able to someday resolve your remaining symptoms.

To the previous poster. Have some sympathy if nothing else. No where did the original poster say they did anything like have sex or run around right after surgery your comments are unnecessary.
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Cyprusmike



Joined: 22 Jun 2011
Posts: 48
Location: Cyprus

PostPosted: Thu Nov 02, 2017 11:47 am    Post subject: Reply with quote

TROLL! Why did PeeTeeT join this forum just to dig up a posting which is over 5 years old? Just trying to frighten people unnecessarily!
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PeeTeeT



Joined: 26 Oct 2017
Posts: 2
Location: why r u lookin at dis?

PostPosted: Thu Nov 02, 2017 12:09 pm    Post subject: Reply with quote

[quote="moey"]Not a huge fan of this site. But they botched this guys surgery. Hope they are able to someday resolve your remaining symptoms.

To the previous poster. Have some sympathy if nothing else. No where did the original poster say they did anything like have sex or run around right after surgery your comments are unnecessary.[/quote]

I do have sympathy for them. I myself have had an inguinal hernia repair. Its not a fun experience. In no way was my message meant to be slandering or harassing. I was just pointing out some things that stood out to me. Also they did actually say they tried to get him to ejaculate, ie. sex. "Sexual Symptoms

Great difficulty getting aroused and erect
Great difficulty maintaining erection
Once erect (if he achieves it) penis is much less rigid than before operation.
Greatly reduced sensation
Great difficulty reaching orgasm and more often than not can't achieve orgasm
If orgasm is reached, ejaculation is very weak and there is virtually no semen.
Unable to get a spontaneous erection (no longer wakes in the morning or during the night with an erection. "

Shouldn't have even tried even if it was months from surgery. The thing is that your intestine seeps into your scrotum through where your testicles should be. This is an injury that would directly affect the functionality of erections. Also I never said that they ran around or anything, but they did say they tried to get him erect. And I do have sympathy because I know the pain of a hernia. In no way was I trying to do anything mean or insulting. My comments were necessary due to the fact that I was saying they shouldn't have tried to get a result so quickly. Also to the most recent poster:
I'm not a troll. I'm not trying to frighten people
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rancher



Joined: 01 Feb 2017
Posts: 112
Location: High Desert, Nevada

PostPosted: Fri Nov 10, 2017 8:46 pm    Post subject: Reply with quote

The lady clearly said~ The operation was 10 weeks earlier```I think you are out of line Faulting them```I guess that's what a Troll does```
Don't think you'll find many fans of yours here``


Anyway~glad to have read this thread and the information within```It would be interesting if Hillbilly would update``` I hope the best for them```

Richard

`
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hillbilly5



Joined: 23 Jan 2012
Posts: 11
Location: East Anglia

PostPosted: Mon Dec 04, 2017 8:45 pm    Post subject: Update Reply with quote

So, just to make clear....my original post was 10 weeks post surgery. This is past the point that you are told that you are able to return to normal activities, which would include gentle intimate activities! In fact, the following is the current medical advice following an open hernia repair

'Most people who have open hernia repair surgery are able to go home the same day. Recovery time is about 3 weeks.

You most likely can return to light activity after 3 weeks. Strenuous exercise should wait until after 6 weeks of recovery.

Don't do anything that causes pain. You'll probably be able to drive again in about 2 weeks or when you have no pain in your groin. You can have sexual intercourse in about 3 weeks'

I hope that clears up any issues regarding 'inappropriate' activities!!

We are now 6 years post op. We pursued the avenue of medical negligence but discovered this is a minefield and a bit of an 'old boys network', and we found our solicitor wasn't really that helpful. had to pay for an independent medical review by a 'medical expert'. We chose the expert who we preferred to carry out the review and informed the solicitor. One of the things we earned was that it's best to choose an expert who isn't still practising, and informed our solicitor. Imagine our annoyance when the report came through and found it was by another practitioner and who is still practising. When we read the report we were shocked at so many inconsistencies and it seemed as if the expert hadn't even read hubby's medical records. He never even met my husband! It was an absolute joke and his expert opinion was that there was no negligence! On the basis of the report the solicitor said there was no prospect of winning the claim in court. We raised all the issues we had regarding the expert and the solicitor refunded the £850 we paid for the report. Unfortunately by this time we were too late to pursue with another solicitor as any claim has to be presented in court within 3 years of the incident. The difficulty is that it is very hard to prove medical negligence and the surgeon has a complete defense if a medical expert states they would have carried out the procedure in exactly the same way. So even though my husband's medical notes on at least two occasions, have comments by neurologists stating that the surgeon caused bruising deep in the abdominal cavity causing nerve damage, this means nothing in a medical negligence case it seems.

Since the last post interestingly I have become employed at our local hospital in the Gastroenterology Unit. One thing that I noticed is that when a patient has sedation for a procedure, they appear to be quite reactive, can hold a conversation and can move around. They just cannot recall what took place in the procedure room afterwards. I find this very interesting and feel this has a bearing on what happened to my husband. On the day of the op the surgeon told my husband he had no anaesthetist who could give him a general anaesthetic, which was his request. The surgeon said that he would rather have operated with a general anaesthetic because hubby was relatively young. Having seen how people respond under sedation, and my husband having been operated on with local anaesthetic and sedation, I believe that he was quite resistant moved around during the procedure which then led to the bruising deep in the pelvis and the subsequent nerve damage. This makes complete sense and I believe the surgeon should never have proceeded with the op without a general anaesthetic being administered.

As far as our life is concerned, hubby is back in work in an office based role, and still has quarterly nerve stimulation treatment for his bowel and bladder function. A couple of years ago he developed a hernia on the other side. Thankfully with his new job he has private healthcare cover and so we had a private consultation. The hernia was repaired laparoscopically and he recovered in two weeks. Interestingly, the surgeon also went in the other side where he had the original hernia and 'corrected' what the original surgeon had done, leading us to believe that he never actually dealt with the hernia correctly in the first place. Private consultant was brilliant and apart from still needing periodic nerve stimulation treatment the two hernias now seem to be repaired properly.

It's been a very long road, with many ups and downs physically, mentally and emotionally. We have learned to be much more questioning regarding medical treatments, and to find out the true risks and benefits beforehand, and would strongly advise anyone else to do so as well.
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Cyprusmike



Joined: 22 Jun 2011
Posts: 48
Location: Cyprus

PostPosted: Tue Dec 05, 2017 10:09 am    Post subject: Reply with quote

Thank you for that update Hillbilly5, I clearly remember your very first posting which frightened the life out of me as I had just developed a hernia and really didn't know what to do so decided to do nothing apart from wearing supports. If you read my earlier postings you will see that during the next 3 years or so mine got progressively worse until it travelled south into the scrotum. At this stage I realized I HAD to do something about it but having read your husband's (and others') experience I planned to seek out a true specialist as I didn't want to be operated on by a General Surgeon or even possibly a Junior Doctor. After a lot of research I came across a true specialist hernia surgeon Mr Martin Kurzer (check out his website) who was at the British Hernia Centre (now I believe the London Hernia Centre) and had the open surgery under a light general anesthetic carried out about 3 years ago. It was trouble free and totally painless, never even had to take paracetemol and 3 years on I am so glad I had the chance to research the subject and choose who I wanted to carry out the operation. As I live in Cyprus and was not prepared to have the operation here I had to travel to London and pay privately but I still think it was money very well spent. Good wishes to you both and hoping for further improvement in your husbands condition - he obviously has gone through so much more than is reasonable to expect!
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